We are patients living with glossopharyngeal neuralgia, here for your support.
trileptal and zinc??
I read someone on here was on trileptal and zinc with a successful outcome and now I cannot find the post with the doses. I have a new pain dr. and we have not had much luck with anything so far and I have tried most of what he has recommended (lyrica; nuerontin; hydrocodone; etc.) but not this combo. Could someone respond to this please? I am having a hard time just leaving the house because of the pain. Thank you.
Comment
-
Comment by sally on February 17, 2012 at 12:41pm -
Monica,
I had a very successful combo of 400 mg tegretal and 600 mg trileptal (split doses) but my sodium levels got too low which was why I had surgery 13 months after diagnosis.I had a dagger stabbing me in the side of the throat with each swallow (even saliva)and was unable to talk. I had no remissions in that time but the combo of those 2 meds controlled the pain in increasing doses. I never tried zinc though took vitamin with minerals and still do.
Please Like Us On Facebook and Follow Ben's Friends on Tumblr and Twitter
To Support LivingwithGPN.org, Click an Ad. Or Two.
Powered by BensFriends.org
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Lupus
Multiple Myeloma
Myositis
Narcolepsy
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Blog Posts
May 2012 LivingwithGPN Community Newsletter
Posted by Ben Munoz on May 26, 2012 at 6:42am 0 Comments 0 Likes
Dear Friends and Family of LivingWithGPN,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities…
Continue
No Eagles Syndrome
Posted by Denise on May 23, 2012 at 11:05pm 0 Comments 0 Likes
My styloid process and tonsils have been removed and no relief from the pain. It is actually worse. Unfortunately, it doesn't seem as though it was Eagles Syndrome. Back to my GPN diagnosis. UGH! I am starting a stronger pain medicine this…
ContinueEvents
© 2012 Created by BensFriends.org
You need to be a member of Glossopharyngeal Neuralgia (GPN) - Online Support Group to add comments!
Join Glossopharyngeal Neuralgia (GPN) - Online Support Group