Glossopharyngeal Neuralgia (GPN) - Online Support Group

We are patients living with glossopharyngeal neuralgia, here for your support.

First Time User Guide

First Time Users, Welcome!!!

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If you are new to this site, we are glad to have you here.

Here are a few tips for getting more familiar with this site.

First, to learn more about this community LivingwithGPN.org and GPN, please visit the About Us page.  

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Things You Can Do With the Community

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Tell Us About You 

Please fill out your profile so the other members will know your history with GPN. This will help your fellow members provide the best support possible! Everyone loves pictures, so upload yours if you can.

 

Join Us in Discussion

Visit the Discussion Tab and read some terrific Discussions about GPN. It's easy to Reply by typing in the box and even Start your own Discussion by clicking Add. This gives the other members a chance to talk to you and respond and you will make some wonderful friends that way.

 

Have a Question? Ask Other Members or Moderators

There's a lot of new information at LivingwithGPN, so it's natural to have questions when you first join. :)

Your fellow members are always happy to help and answer questions, so ask them.

Also, you can always ask the Moderators. If you click on the Main Page Tab, that will show you the most current and up to date information available. On the left side you will see a list of this Community Moderators. If you have any questions, or concerns, please go to one of their pages (you can do this, just by clicking on their name) and they can answer any questions that you have.

 

Get To Know Other Members, Make Friends

Go to Members Tab to see other member profiles and read their story. Also under their picture, there will be an option to "Send a Friend Request." It's very similar to Facebook and other Social Networks, this gives you a chance to make friends with other members and exchange private messages.

 

Share Your Story With Us 

We'd love to hear more about you. We are all here to support each other and share our stories so we can all benefit. You never know, you could tell your story and help someone else who is just getting started or you may get more support and information than you ever thought was possible. We're working on an ebook that shares the inspirational stories of our member so others with GPN won't feel so alone. You may share your story with us by sending emails directly to stories@bensfriends.org or by visiting this tab:Share your Story/Tips.

 

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Whether you were just diagnosed or diagnosed 20 years ago, we've got something here for everyone affected by GPN - patients, family members and loved ones.

 

If you want to learn more about the features of this site please visit our FAQ page.

 

We look forward to getting to know you and are very happy you are here with us.

Again, our warmest welcome!!!

 

Ben's Friends Crew

(www.bensfriends.org)

 


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Blog Posts

May 2012 LivingwithGPN Community Newsletter

Posted by Ben Munoz on May 26, 2012 at 6:42am 0 Comments

Dear Friends and Family of LivingWithGPN,

We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities…

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No Eagles Syndrome

Posted by Denise on May 23, 2012 at 11:05pm 0 Comments

My styloid process and tonsils have been removed and no relief from the pain.  It is actually worse. Unfortunately, it doesn't seem as though it was Eagles Syndrome.  Back to my GPN diagnosis.  UGH!  I am starting a stronger pain medicine this…

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