Glossopharyngeal Neuralgia (GPN) - Online Support Group

We are patients living with glossopharyngeal neuralgia, here for your support.

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  • Moderators Group

    Moderators Group

    5 members Latest Activity: Mar 30

    This is a private group exclusively created for LivingwithGPN.org moderators.

  • ROAD TO A DIAGNOSIS

    ROAD TO A DIAGNOSIS

    2 members Latest Activity: Jun 29, 2011 A discussion forum to help other members on their journey to a diagnosis.

  • ONLINE RESOURCES

    ONLINE RESOURCES

    5 members Latest Activity: Feb 8

    A place to post online resources with helpful information on Glossophayngeal Neuralgia, medications and surgical procedures.

  • POSITIVE THOUGHTS

    POSITIVE THOUGHTS

    3 members Latest Activity: Aug 12, 2011

    A place to post possitive affirmations and quotes to inspire yourself and inspire others.

  • LAUGHTER & HUMOR

    LAUGHTER & HUMOR

    4 members Latest Activity: Jul 7, 2011 Take a break from the pain and frustration - if only for a few seconds.  Laughter is good for the body and soul.  Get those endorphins moving around.

  • Family and Friends of GPN

    Family and Friends of GPN

    1 member Latest Activity: Jan 15

    Where friends and family meet to share views, insights and stories. 

  • CHILDREN WITH GLOSSOPHARYNGEAL NEURALGIA

    CHILDREN WITH GLOSSOPHARYNGEAL NEURALGIA

    1 member Latest Activity: Mar 26, 2011

    A discussion group for children dealing with Glossopharyngeal Neuralgia.

  • SUCCESS STORIES

    SUCCESS STORIES

    2 members Latest Activity: Mar 26, 2011 A forum to share your success stories on any number of Glossopharyngeal Neuralgia related issues.

  • SUGGESTION BOX

    SUGGESTION BOX

    1 member Latest Activity: Mar 26, 2011

    Everyone is invited to post suggestions, ideas, constructive criticisim and any feedback that can make this group a better and more user-friendly…

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Moderator

May 2012 LivingwithGPN Community Newsletter

Posted by Ben Munoz on May 26, 2012 at 6:42am 0 Comments

Dear Friends and Family of LivingWithGPN,

We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities…

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No Eagles Syndrome

Posted by Denise on May 23, 2012 at 11:05pm 0 Comments

My styloid process and tonsils have been removed and no relief from the pain.  It is actually worse. Unfortunately, it doesn't seem as though it was Eagles Syndrome.  Back to my GPN diagnosis.  UGH!  I am starting a stronger pain medicine this…

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