We are patients living with glossopharyngeal neuralgia, here for your support.
Pain, pain go away, come back....NEVER
Hi guys
Just in need of some support as going through an "attack" - severe pain deep in right side of throat, that while has been "dormant" (i.e. painful but not constant and have been able to go about daily business) for the last 8 weeks while on Neurontin (gabapenthin), the last 2 weeks I have felt the discomfort increasing and then in last 2 days feel like I'm back to square one - can't swallow, breathing in cold air is excruciating, the drugs not making me as "stupid" as they usually do (which only means they're not working anymore?) and yesterday in work I was dizzy as hell and that's never happened me before. My throat is DRY, oh so dry, no amount of fluid will wet it out and that's making swallowing all the more harder. That's a new symptom, was never like that before.
Am stressed as in a new job and don't get sick pay so any time off and I'm unpaid. Snapping like hell to husband and have barely seen my young son I've spent so much time in bed. Am so angry it has come back like this as was admitted to hospital in September and was put on the drugs then and up to now I thought they were working at least 70% - now it feels like 5%.
WHAT pain relief has worked for you? It seems like nothing is. Have to wait until Monday to get appointment with my doctor, the UK system for getting an appointment with your GP definitely doesn't favour us "long sufferers" that's for sure.
:(
Replies to This Discussion
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Permalink Reply by Kaz on -
Hi Chris,
Do you suffer from very dry eyes and/or dry mouth? If you do and your throat dryness is actually at night before you sleep, then I would suggest you go and see an eye specialists and ask for the following:
- Schirmer Test
Measures tear production. - Rose Bengal and Lissamine Green
Eyedrops containing dyes that an eye care specialist uses to examine the surface of the eye for dry spots.
This is to determine if you have a condition called Sjogren's. Most people only suffer from it mildly affecting the throat, dry mouth and eyes. Unfortunately I have it chronically, affects my joints and salivary glands terribly and causes even more fatigue with me on top of the MS :-(
If your dry mouth is more so that you are waking during the night and it is very dry, another cause could sleep apnea. A sleep study test will determine if that is a factor. Other things can be medication, especially diuretics. So look at whether you have started any new medication a few weeks, or even a couple of months prior to the dry mouth beginning. Tegretol can cause a dry mouth too.
Anyway, those products will help manage it. Will be interested to hear from you to see how you go, and whether you go and have the eye tests.Kaz
- Schirmer Test
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