We are patients living with glossopharyngeal neuralgia, here for your support.
General (109)
| Featured Discussions |
|---|
 Questions concerning surgeryHi, My name is Rob. This is my first post. I have been dealing with my symptoms for 6 months. Recently the pain is getting harder to manage… Started by rmcLatest Reply |
| Discussions | Replies | Latest Activity |
|---|---|---|
 Does anyone have Atypical GPN?Hi - I'm new to the forum, having recently been diagnosed. For the past 15 months I was under the impression that I had sudden onset of C… Started by jessica |
4 |
6 hours ago Reply by jessica |
shingles virusIs the shingles virus or any other virus associated with GPN? Started by lynlee |
0 | yesterday |
Questions concerning surgeryHi, My name is Rob. This is my first post. I have been dealing with my symptoms for 6 months. Recently the pain is getting harder to manage… Started by rmc |
21 |
on Friday Reply by KayJay |
 Twitter ChatHope everybody is well. Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other commu… Started by John "JC" Colyer |
2 |
May 18 Reply by John "JC" Colyer |
 Help, I'm scaredSo, my GPN had been in remission with 2000 mg of neurontin and now today I got a sharp pain in my throat while taking a drink of soda :( no… Started by Cheri Freytag |
15 |
May 17 Reply by Kara Wilson |
 What would you do to comfort a sick friend?"What would you do to comfort a sick friend?" Aside from the usual bouquet of flowers and basket of fruits, I'd like to hear your suggestio… Started by Armando Abrero |
1 |
May 15 Reply by Tracy Z. |
 Contemplating MVD, is it the right thing to do?Hi Everyone It is a relief to find and read about other peoples issues with GN. I thought and assumed that finding a forum like this would… Started by Alan Morrison |
12 |
May 7 Reply by JBimadingdong@aol.com |
I am new to this and don't know my way around the puter much. Have a lot of questions HELP!Hi...I am new here and don't know my way around the puter very well. I need answers please. JB Started by JBimadingdong@aol.com |
6 |
May 6 Reply by Tracy Z. |
Nerve Block for PainHi, Has anyone had their Minor Occipital Nerve Blocked to relieve GPN pain (post surgical)? It worked Great for me. I also have a Chiari M… Started by Tracy Z. |
0 | May 6 |
 POLLENI HAD SURGERY IN 2009. HAVE BEEN PAIN FREE EXCEPT WHEN THE POLLEN IS BAD. THE PAIN NOT BAD BUT I KNOW IT'S THERE. DOES ANY ONE ELSE HAVE P… Started by CHUCK GRANT |
7 |
May 5 Reply by sally |
Please Like Us On Facebook and Follow Ben's Friends on Tumblr and Twitter
To Support LivingwithGPN.org, Click an Ad. Or Two.
Powered by BensFriends.org
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Lupus
Multiple Myeloma
Myositis
Narcolepsy
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Blog Posts
May 2012 LivingwithGPN Community Newsletter
Posted by Ben Munoz on May 26, 2012 at 6:42am 0 Comments 0 Likes
Dear Friends and Family of LivingWithGPN,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities…
Continue
No Eagles Syndrome
Posted by Denise on May 23, 2012 at 11:05pm 0 Comments 0 Likes
My styloid process and tonsils have been removed and no relief from the pain. It is actually worse. Unfortunately, it doesn't seem as though it was Eagles Syndrome. Back to my GPN diagnosis. UGH! I am starting a stronger pain medicine this…
ContinueEvents
© 2012 Created by BensFriends.org
