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What is Glossopharyngeal Neuralgia (GPN)?
Glossopharyngeal Neuralgia (GPN) is “chronic pain syndrome that causes intense, shooting pains in the back of the tongue and throat, tonsillar areas, and middle ear.”
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Forum
Medical Forms and Trackers
Started by Ben Munoz in General yesterday. 0 Replies 0 Likes
Thanks to Renie, moderator of LWTN, for sharing the links of the basic forms and worksheets that can help you organize your medical information and also prepare for a doctor visit.Here's the list:…Continue
See the goodcausetv interview with Scott Orn - Co-Founder of Ben's Friends
Started by Ben Munoz in General on Monday. 0 Replies 0 Likes
Bensfriends.org, the organization that runs this network and sets up patient support groups to help and support patients diagnosed with rare illnesses is being featured at goodcausetv. Ben's Friends now with 35 different patient support groups and…Continue
surgury
Started by mike in General Jun 10. 0 Replies 0 Likes
i been recomended for surgury they are going to do the janetta procedure on me which is a brain decompression it on line if u wish too see this procedure, my question has anyone with gpn had this done to them and did it work and was there any side…Continue
8 months plus...
Started by Ricknot in General. Last reply by Vicdoc Jun 8. 1 Reply 0 Likes
Hi all! I have been diagnosed with GPN and put on Carbamazepine in December. I was originally sent to a Neurologist by my PCP due to intermittent horrible pain in my left ear (discussion called "the pain is the thing"). I have been pretty much pain…Continue
Latest Activity
Kaitmanda commented on the4leafclover's blog post INTRODUCTION
Scott Orn left a comment for the4leafcloverVicdoc replied to Ricknot's discussion 8 months plus...
the4leafclover posted a blog postINTRODUCTION
the4leafclover left a comment for Scott OrnThis Week On Living With GPN
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Medical Forms and TrackersPosted by Ben Munoz on June 17, 2013 |
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See the goodcausetv interview with Scott Orn - Co-Founder of Ben's FriendsPosted by Ben Munoz on June 16, 2013 |
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"Thank you. Hope to learn more about GN and hopefully contribute. I am trying to reduce the meds I..."
“Thank you. Hope to learn more about GN and hopefully contribute. I am trying to reduce the meds I take for pain but no success to date”- a member from Glossopharyngeal Neuralgia (GPN) - Online Support Group
Glossopharyngeal Neuralgia (GPN) - Online Support Group
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Glossopharyngeal Neuralgia (GPN) - Online Support Group
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Blog Posts
INTRODUCTION
Posted by the4leafclover on June 8, 2013 at 3:58pm 1 Comment 0 Likes
Hi, all. My name is Jo. I'm a 47 year old wife (that's hubby and myself in my profile pic) and Mom to two adult kids (no grandchildren yet). I'm a vegan, a Christian (a very open-minded one -- I'm 100% FOR same-sex marriage as I strongly believe…
ContinueMay 2013 Community Newsletter
Posted by Ben Munoz on May 25, 2013 at 3:30am 0 Comments 0 Likes
Dear LivingWithGPN Family and Friends,
Celebrating Awareness Months for specific rare diseases are a great way of procuring attention to our cause. By discussing our condition and helping to educate others, our active participation creates…
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