Welcome! You're not alone.
If your family has been affected by Glossopharyngeal Neuralgia (GPN), consider Glossopharyngeal Neuralgia (GPN) Support Network your second home.
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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
"To Know the Joy of Giving"
Glossopharyngeal Neuralgia (GPN) is “chronic pain syndrome that causes intense, shooting pains in the back of the tongue and throat, tonsillar areas, and middle ear.”
We’re so proud to announce the release of the Ben’s Friends iPhone App!!!
Go to the App Store and download it now. To help others locate the app easier and enjoy online support, don't forget to give the app a 5-star rate review. Strong reviews like 5-star help bumps up Ben's Friends in the Apple's search result.
In the App, you can access all 35 support communities through the site and it’s perfect for staying in touch with your friends, info and support while on the go. In our beta tests, patient reported using it in doctor office waiting rooms and right after they were given a new diagnosis. The next feature in the App will be portable doctor reviews!
Bensfriends.org, the organization that runs this network and sets up patient support groups to help and support patients diagnosed with rare illnesses is being featured at goodcausetv. Ben's Friends now with 35 different patient support groups and…Continue
i been recomended for surgury they are going to do the janetta procedure on me which is a brain decompression it on line if u wish too see this procedure, my question has anyone with gpn had this done to them and did it work and was there any side…Continue
Hi all! I have been diagnosed with GPN and put on Carbamazepine in December. I was originally sent to a Neurologist by my PCP due to intermittent horrible pain in my left ear (discussion called "the pain is the thing"). I have been pretty much pain…Continue
Posted by Ben Munoz on June 17, 2013
Posted by Ben Munoz on June 16, 2013
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Glossopharyngeal Neuralgia (GPN) - Online Support Group
Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to firstname.lastname@example.org.